Chronic Fatigue Syndrome, also known as M.E (Myalgic Encephalomyelitis) effects millions of people worldwide and yet it is a little understood illness, often dismissed as psychological rather than biological. Millions of people suffer around the world and currently there are major campaigns to try to persuade governments and the medical profession to do more bio-medical research into this disability. Australia are leading the way at the moment with their parliament taking it very seriously. Since the Covid 19 outbreak doctors are waking up to the fact that post-viral syndrome causes CFS and it can create flu like symptoms on and off for months but a lot of us with post-viral CFS have these symptoms daily for decades.
Many illnesses can cause CFS but when it is caused by post-viral symptoms it is usually ignored by the medical profession and classed as a psychological problem not a biological one. Getting CFS/ME recognised as disability is still not possible making financial and medical help almost impossible to get.
In its worst cases, sufferers can have bouts of the illness throughout their whole lives and live everyday in pain. CFS often prevents us from working and earning a living and without state aid, (currently unavailable in the U.K for CFS) we can be left homeless and reliant on family charity and the generosity of friends.
I have suffered with CFS for over 25 years. Over that time I tried my hardest to keep working but eventually I lost my home, business and livelihood to it. I found that throughout my 20’s and 30’s if I worked more than part-time I would have a serious relapse. In the end I could not earn enough money to support myself.
In my 40’s I am hoping to make a living from writing and hope you and your friends will support me by buying my books over the next few years. At the moment I am out of pocket due to self-publishing and now receive PIP (about £300 per month) but of course this is not enough to live on independently. The future is very uncertain.
If you are a CFS sufferer, dear reader, then my heart goes out to you and I hope that one day, we will find a cure. Till then, never give up and never give in no matter how bad it gets.
To find out more click on some of the links below and follow come me on Twitter
How does ME/CFS feel?
In addition to post-exertional malaise, unrefreshing sleep, cognitive dysfunction and/or orthostatic intolerance, many patients experience a range of other neurological, autonomic, and immunological symptoms either as a permanent feature of their illness or during a “crash” or flare. These symptoms include:
If you have been effected by depression, domestic or child abuse, bereavement, addiction or CFS I have put a few links to helplines. You might find an earth angel waiting to help you.
These links are correct at time of blogging, but I apologise if some are no longer valid.
I am sorry I cannot list for every country in the world, but if you have access to the internet, then just use your search engine and if not, ask around in your community for where to find the help you need.
Help cannot arrive unless you ask for it and never be afraid to ask – there is no shame in feeling pain – we are all human and we need to help each other, whenever we can. Many who have suffered go on to help others – you might set off a chain reaction of Love by taking those first few steps to healing your own heart.
Disclaimer: I am in no way affliated with the above charities and do not know their inner most financial dealings etc but have put links to them only as a signpost and cannot vouch for any of them personally.